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In January of 2010, it was a brisk sunny Wednesday when she said “I love you.”
I’m not sure when the dementia started or when we noticed, but I had been making weekly visits for the past six months to relieve my dad who was my grandma’s full-time caregiver. He lived with her, but he didn’t have a life outside of her, except playing with Sadie the Doberman and tending to his Sonoma garden. He was usually in the garden when I would arrive, and we rarely exchanged greetings.
The days began to blur; dementia was stealing our lives. Some days were better than others, but better is a relative term when it comes to someone’s mind and body deteriorating and betraying them. I’d be lying if I said I never wished for her death. She was 84, and I feared she might live as long as her mother, my great grandma Helen, who died at 98. It seems like a cruel and unfair sentence; to force someone’s body to stay and only allow their mind to drift out of memory. For me, she was already gone, and I had already said goodbye.
Today seemed typical. As I entered the house, Sadie’s nails clicked along the wood floor bounding over to greet me. The screen door slammed, and her tongue kissed my cheek as I turned to avoid her halitosis. I first learned the word halitosis from grandma. She used it to describe the bad breath of a black lab from my childhood. “Ok, Sadie, that’s enough,” I said pushing her paws down and wiping away the spittle. Continue Reading…
Every moment is in slow motion. How the roughness of the chair feels against your shoulder blades. How the scissors pressed against your neck feel so cold. So cold. How you think, “Everyone will just blame me.” How he tells you they’ll laugh at you when you tell him you’re going to call the police.
You don’t call the cops, but later, always, wish you did. Even though you lived. You want him to be punished. Still. Even today.
To love this kind of person is to never forget. How even when you remember the good times, you think, “He tried to kill me. He threatened to kill me. He tried to kill my cat.”
By Ginger M. Sullivan.
Long before we ever have children, we have fantasies of what they will be like. When I was a childless twenty-something, my future daughter was unencumbered. She could choose her heart’s desire. At full range. Unlike me, she would not have to fight to be her true self. As part of the first female generation in my family line to not follow a traditional course, I had crossed the threshold. I had broken the glass ceiling. College beyond the Mason-Dixon line, a respectable intellectually-based career with my own salary, athletic accomplishments written up in the newspaper – these were now possibilities for my daughter, as opposed to being oddities for me. My daughter could bask in the endless possibilities I had hard-won. She wouldn’t have to like pink. She could run and play without stopping to always be the nurturing one. She could discover her talents without the risk of disappointing the holders of the mold of “what a girl should be.” She would be free to explore all of who she is without the subtle and not-so-subtle messages of limitation. The world was her oyster and I was happy to be the beacon of such opportunity for her.
Or so I thought.
By Emily Rapp.
The power of grief to derange the mind has in fact been exhaustively noted.
– Joan Didion, The Year of Magical Thinking
Maps to Anywhere (Numerous)
I hate maps. I can’t read them, understand them, interpret them, or follow them. I have a whole drawer full of maps and pop-up, fold out street guides for various cities, and although I take them with me when I visit these places, I never consult them. Instead I tote them around in my shoulder bag, my purse, my backpack, and ask people on the street for directions.
Map to a Funeral (Hidden)
It is mid-winter in downtown Chicago, and my parents, sitting in the two front seats of a rented mini-van, are huddled over a paper map. Exhaust billows in gray and black streaks past the windows. Commuters look shrouded and miserable, hurrying over frigid sidewalks in the rapidly fading light. I’m in the back seat with my ten-month-old daughter Charlotte, who is strapped in her car seat, babbling and cooing. She doesn’t know this is a terrible blizzard in rush hour, or that someone – my father’s mother, my grandmother – has died. We are driving from Chicago to Pontiac in a storm that feels as thick and relentless as the sound of the word blizzard on the radio, which is turned up high. People are frenzied, worried and watchful, the way people love to be about extreme weather conditions.
My grandmother has died at 93 after refusing food or fluids for two weeks, which is some kind of record. My son, at three years old, lasted only a few days with the same restrictions. Ninety years difference – a literal lifetime – between their ages at death. I struggle to understand what this means or how to absorb it, but generate no cogent thoughts.
Beyond the city limits the interstate is a blur of red and blue emergency lights, car blinkers switching on and off in irregular patterns that compete with the holiday hangers on who leave their Christmas decorations up after the new year. The drivers in the cars stopped on either side of us are reading newspapers spread out over the steering wheels or tapping into their phones, having given up changing lanes. One woman is slumped over, face in her hands, weeping.
My daughter poops her diaper, and I unstrap her from her safety restraints and change her in the unmoving car. My parents are bickering. My brother is waiting at the airport. We’d gone to Soldier’s Field to see the Aquarium, but ended up looking at twenty-year old exhibits of stuffed animals: antelope and bears in permanent yawn, taxidermy tails stalled mid-air. I crammed us all into a photo booth in our last fifteen minutes, because I had an enormous glass of wine for lunch and because we need to laugh.
“We should never have gone.”
“Who could have known we’d get stuck in a blizzard.”
This conversation continues on endless repeat, my parents trading lines between them until I threaten to throw the diaper into the front seat if they don’t change the subject. “Don’t think I won’t!” I shout, and feel like a teenager on vacation with her parents: petulant and trapped, self-righteous and unhappy.
We make it to O’Hare and pick up my brother and my nephew. My dad argues with the security guard, telling her that the airport is designed to be confusing. I tell him this is certainly not true. Through the open van door I toss Charlotte’s diaper into a curbside trashcan.
An hour from O’Hare, far from any lights, wind, snow-thick, swirls white and erratic over the roads mainly clear of cars but still treacherous. My dad drifts between lanes, floats across medians. “You’re fucking scaring me!” I shout when he crosses a road without looking in both directions. My brother glares at me for cursing in front of his ten-year-old son.
We stop at a town outside Chicago, at a sports bar, where six men wearing orange vests sitting at a table turn to stare at us when we walk through the door. We have been in the car for nearly ten hours. When I tell my friend Gina, a native of Chicago, where we ended up for dinner, she tells me she’s lived in Chicago her entire life and I’ve never even heard of that fucking place.
A waitress accidentally spills a beer on my father’s lap.
“This day is shitballs,” I tell him, and hand him a stack of napkins.
“Yep,” he agrees, but he’s laughing. He leaves the apologetic waitress a generous tip.
Map to a Church (Unnecessary)
The route to my grandmother’s funeral service is a straight line from the hotel to the church down a road lined with two-story houses, all fenced yards and large wooden porches, the sidewalks stacked on both sides with fresh snow that blows away in sporadic blasts of arctic wind to reveal weeks-old snow covered in soot, stamped with boot and paw prints and pieces of dog shit. The church is near the town lake, where a group of geese huddle together looking stunned and miserable on ice the same color as the wall of cold sky that seems almost low enough to touch the frozen water. I think they’re geese. I know they’re not ducks. I’m not a poet. I don’t know my birds. I don’t know an elm from a poplar. I’m a little bit better with flowers. I know a blue spruce because there was one in my yard in Santa Fe, and it was the one pop of color on the gray winter day two years ago when my son died.
“Don’t they migrate somewhere warmer?” I ask. “Those geese or birds or whatever?” Nobody answers me. At the church, my brother and his son leap out of the car and sprint across the parking lot. The frozen lake reminds me of another frozen lake in Minnesota where I spent one weekend listening to Joni Mitchell records and writing bad poetry (I didn’t know my birds then, either) with a group of college girlfriends; another frozen lake in Wisconsin where I watched five continuous hours of CNN on the first anniversary of 9/11. Both events seem whole lifetimes ago, memories connected to my current life by delicate filaments that show their strength in the strangest moments.
I pick my way across the parking lot with a bundled Charlotte in my arms. Inside people are milling about in front of a funeral board: pictures of my grandmother as a young girl on the farm, on a horse, in the early 1940s with my father in a cute suit, standing in front of a flat white house, with her parents, who are expressionless and shaped like barrels.
My grandmother was cruel to me, and I am not sad that she is dead. I feel like 93 is a pretty good run. She was rarely sick. She had friends and was comfortable.
My dad speaks first, and he tells the congregation that his mother once told him that he could have searched the whole world over and he never could have found a better wife. This is for my mother, to whom my grandmother was also cruel.
The minister gives a dorky eulogy about salvation that doesn’t happen “in the big city,” but instead in “a little church in the prairie.” His language feels vaguely pornographic to me, all this talk of being “chosen” and “choosing,” and my grandmother saying yes to God, again and again she said yes. I can’t stop thinking, sitting in the back pew nursing my child where nobody might happen to see my breast, that there’s no way this guy voted for Obama.
The only time I feel moved is when my second cousin’s husband sings a solo, halting and occasionally off-key version of Beautiful Savior at the lectern. He struggles through all of the verses without looking up. In front of him, on a table decorated with flowers, my grandmother’s ashes are in a simple black box.
After the funeral we eat fried chicken in the church fellowship hall. My grandmother’s sister introduces me to a man who is clearly suffering from dementia.
“This is Emily,” my great-aunt says. “She wrote a book about her baby who died.”
“Who are you?” he asks. “Did somebody die?” He looks around the room. Someone is slowly releasing a Jell-O mold onto a plate in the kitchen. A woman in an apron dumps more chicken into a bowl on the buffet table.
“My grandmother died,” I say. “Lois died.”
My great aunt is frustrated. “Listen,” she says, tapping the table in front of the man.
He looks at her, then at her hands. “Yes? Who are you?”
“I’m Emily,” I say.
“She’s a writer,” my aunt continues, “and her first book is all about…well,” she says, and flaps her hand in the air. “You tell him how you was made wrong.”
After almost a decade together, our shared language is both oral and visual. A wink means, did you see what our kid did? A sigh, what’s wrong now? A gentle nudge with a big toe on a calf in the middle of the night, please stop snoring already. Our words have meanings that only we understand, our promises to love each other through sickness and in health made with knowing smiles at the altar after having lived through a premarital spring, summer and fall of ailments that would precede another four seasons of tests and uncertainty.
Starting as a pre-med in college, though I wouldn’t see it through, I learned a language of medicine and science, names for various bodily systems and afflictions, words to describe how one is feeling. The language of love, our words that we speak to one another, has the staccato rhythm of a heartbeat, an electrical impulse sent to the tiny metal disk that rests underneath the surface of his skin, shocking his essential pump into a steady beat when it threatens to stop completely. The disk that was implanted two years ago when just after his 32st birthday, and right before my 31st, the fear of widowhood rose with bile in the back of my throat as I listened to the voice on the other end of the phone.
“Pick me up now.”
“My heart stopped.”
“I have to see the doctor immediately.”
“I love you.”
The first time he collapsed, in our fourth year together, he 29 and I 28, we were at a diner with my mother and my brother two days after Thanksgiving. I did not yet have a ring on my finger symbolizing our marriage yet to come (that would come two weeks later on the National Mall in the freezing cold moonlight), and when he laid his head on my brother’s shoulder as we sat at the breakfast table, we laughed it off for a moment.