Originally posted on The Grateful Life:
I want to rage at the world. Beat my fist against the earth and demand answers. Why? WHY? Why Ronan? Why Emily? Why anyone?
Ronan is dying. There is no saving him. Not now, not ever. He was born with Tay-Sachs, and he’ll die of it – probably within the next day, or handful of days. They’ve stopped life-sustaining measures and instead opted for palliative ones, to ease any discomfort he goes through. Wikipedia describes the horrible progress of Tay Sachs in cold, definite terms.