Alisa Schindler Archives | The ManifestStation

When Suffering and Appreciation Walk the Dog

June 22, 2022

My husband usually does the first walk, standing at the door, holding out the leash and grumbling, ‘Ready to walk, Dummy?” Dummy is Rocky and he takes no offense because my husband doesn’t mean any. He loves the furry beast and the fresh air, but this morning the job is mine because my husband has gone off with our three teenaged boys rafting down the Delaware river. I bowed out of the adventure – an activity we did once before when the kids were younger, and the memory of sunburned, miserable wailing along with the impulse to hit my husband with a paddle still haunts. Instead, I stay behind to hang with my cousin who is battling cancer, an entirely different kind of nightmare.

It’s hazy and overcast, the damp of last night’s rain still clings to all the green underfoot and around me. Rocky likes it, considers it a fresh morning salad and we stop every few feet for him to sniff, piss or chew. Typically, I distract myself on these walks with texts, phone calls or even an episode of the latest Netflix show I am obsessed with (Offspring!). With my weak ankles and uneven sidewalks, it’s a middle-aged mom’s rebellious walk on the wild side, but today my phone rests in my pocket. I want to notice the ripe green of the landscape, the peeking sun warming my skin, the orange and black butterfly dancing along a neighbor’s bursting landscaping.

I left my cousin back at Sloan yesterday for yet another complication related to her cancer. It seemed like only a minute ago that her life was full. Overfull. She worked hard when it was work time and played hard when it was playtime with no time or interest in stopping and smelling the roses, or in my case now, the daisies. She is in a bed, where she has mostly laid for months now. Her life no longer her own; at the mercy of her disease and the doctors who (kind of) care for her.

She is emaciated. I run to Carvel to bring her favorite thick shakes or some special treat that she desperately wants to eat. Watching her struggle to finish three bites of anything before the food overwhelms her bloated, distended stomach or makes her nauseous is heartbreaking, somehow making me linger and savor my nightly ice cream sundae but with a guilt that has nothing to do with calories.

The walk is relaxing me, except when Rocky spies a bunny and almost pulls my arm from its socket. “Rocky!” I yell, holding the leash forcefully. “No Bunnies!” His soulful eyes look up to me in remorse, but it is more likely for a consolation for his lost bunny. Sighing, I toss him a treat. Our walk resumes and I go back to focusing on the neighborhood homes and the blooming flowers and not on my cousin who hasn’t had the strength to walk her neighborhood in months. Not that she liked to walk her neighborhood, but that is beside the point.

My cell rings. It’s my youngest son secretly calling from the car to report that he does not want to go rafting, although I already know this. “You are going to have fun,” I reply brightly, even as the memory of his wet and terrified five-year-old face flashes in my brain. “And I’ll have a special treat waiting for you when you come home.”

“Yay, mama!” he says and my heart expands and breaks. He is now thirteen. My cousin’s daughter is only eight.

I turn the corner and pass ribbons of blue and orange roped around the trees. They appeared a couple of months ago in memory of three young lives (two of them brothers) taken the next town over when a car crossed a divider and crashed into them head on. I have thought obsessively about them and their families, and the randomness of a tragedy too much to bear.

It’s everywhere. This suffering. Mixed in with the underappreciated joyful mundane. A typical dog walk. Flowers bursting all around. My friend’s voice on the other side of my cell, relaying a story that has us both cracking up. Gifts beyond measure.

At home, I fill my cup with dark, rich coffee and sip leisurely. Not too long ago, my cousin loved her extra large coffee, light and sweet, but cancer has stolen that pleasure as well, changing her taste buds, giving her reflux and basically making many of her beloved foods and drinks abhorrent to her. I look down at my cup in disgust. How can I enjoy when she cannot?

Sighing, I take another sip. What good will denying myself do for my cousin? Doctors can’t seem to do anything for her? Being a good person hasn’t made a difference. It’s just coffee, I argue. Just like it was just a dog walk. But really, they are what make up a life. The simple pleasures. The stuff we take for granted is of course what matters most.

I will see her in a couple of hours. Sit on the floor by her bed and entertain her with meaningless stories that hopefully bring a small smile and distraction. I will offer her food and treats that she might take a bite or two of before her stomach decides it can tolerate no more. We will talk about the Netflix show I encouraged her to watch (Offspring!) and escape into that world for a while. I will listen to her fear and worry and do my best to soothe. I’ve been told it’s not my strong point. My own worry has a way of leaking into my face, but I am practicing in front of a mirror just like her best friend instructed.

There are no answers, small comforts, and a lot of pain for the sick and suffering. Life loses all its flavor and sparkle as loved ones watch helplessly. Angrily. Miserably. But with no choice in the matter, we must keep going. Listen closely. Hug tightly. Laugh freely. And love fiercely.

While my boys traverse the waves, riding the choppy and the serene, I continue to sip my coffee and think about my cousin as the more turbulent waters rush all around.

Alisa Schindler is a mom of three boys and wife to Mr. Baseball. She schleps children, burns cupcakes and writes essays that have been featured online at the New York Times, Washington Post, Kveller, Good Housekeeping and Northwell Health’s The Well, among others. In her spare time, she writes sexy, twisty fiction novels. Find out more about her at alisaschindler.com.

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Guest Posts, Family, pandemic

I Could Have Run a Railroad

November 25, 2020

By Alisa Schindler

I have always loved the rain. The quiet of the sky. The soothing drone of a million hearts beating overhead. The deep grey seeps into my bones like a drug, slowly calming, and telling my brain to shhhh. There is nowhere to go; no bright and tempting sun guilting me with its happy warmth, pressing me forward to run, skip and laugh. No open, welcoming day beckoning me with possibilities. Now it is alright just to breathe and embrace that feeling where pressure simply evaporates. There is only a moody somberness, a gentle drum lulling me into peace.

When I was younger, my father used to chasten me about the bubble I surrounded myself in and accuse me of complacency. “Don’t be another boring housewife,” he’d say and gift me books by Ayn Rand hoping to inspire. “You’re a Dagny.”

I’d roll my eyes, but take the books, devouring them in private. Deep down I heard him, his message taking root in the brain I was busy ignoring, although I refused to give him the satisfaction of acknowledgment. It wasn’t like he had the right to judge, I thought. He had done nothing of substance. He was a man with huge romantic notions of the world and no follow through, all about the ‘big ideas’ and being one of the ‘beautiful people’.

To be fair, he was beautiful. Strong and masculine, with crystal green eyes that mirrored my own and thick wavy hair that had prematurely grayed. He was a legend on the ball field and the racquetball courts. With his charismatic smile, easy laugh, and love of a good party, both men and women gravitated towards him.

Even with erratic work habits, his charm, good looks and intelligence helped him survive and, at times, even thrive, in his vocation as a salesman. But that was in the 70’s and 80’s when no one looked too deeply. If they had they would have seen an addict who moved from one sad, dirty, cluttered place to another, often sleeping on a mattress on the floor. Someone who lived from paycheck to paycheck and visited his kids on the weekends at their new home with their new family out in the suburbs. Still, he always came bearing gifts and smile.

For a time.

By my twenties, his alcohol and recreational drug years were behind him, but his struggles were just beginning. I made the mistake of moving in with him after college after a failed back operation led to dependencies on pharmaceutical opiates. It didn’t take long to realize I was trapped. He needed me to shadow him as he staggered around on pain medications. He needed me as he seesawed between the lows of depression and manic bursts of energy and enthusiasm. Some days he couldn’t leave his bed, other days we played tennis. Some days I wrestled car keys from his hand; his glazed unconscious eyes in complete opposition to the strength of his anger and grasp. Other days, we sat side by side watching episodes of X-Files or Star Trek eating Tupperware bowls filled with cereal, finding moments of ridiculousness and laughing till milk came out our noses.

It was the inconsistencies of health, mental and physical, that kept me tied. The highs that reminded me of his sparkle and my childhood adoration and the lows that overwhelmed and obligated me. He had no one else. I was his sun, his moon, and his savior. But when he talked to me about stepping outside my bubble, I could see nothing but his need and my potential floating away.

Like a good first-born child, I took to my martyrdom like worker bee to queen. I dove in and let it define me; using it to separate myself, to hide, to solidify the bubble into armor, until there was only me and my struggle with his struggle.

As the years passed, I finally found a way to move out and leave him – I got married. Had babies, boy one, two and three. Created a life filled with privileges and pleasures. But through it all he was there, an umbilical rope of need and devotion connecting us.

As he aged and weakened, he softened his view of me and the world. Dagny Taggart wasn’t all that anymore. He excused my complacency and decided to extol my virtues instead. “You’re a great mom,” he’d say. “I understand why you like your bubble. The world is crazy. Your bubble is good.”

My bubble was better than good – a wonderful husband, beautiful children, the house in the suburbs, endless books to read, writing to keep me satisfied and sane and good friends to laugh and cry – but with him attached I remained, as always, harnessed. Stuck to the ground, rooted, never taking flight. No longer sure I even wanted to.

And then, he died.

Something that was ‘a long time coming’ and should have happened decades before, took me by complete surprise. I was suddenly free from his tortuous, desperate need. I could float in the sunshine of my family, meander in and out of marshmallow clouds, drift through the lazy rainbow days of baseball, baking and boys. I could write. Or run a railroad.

Yet, the relief everyone talked about didn’t come. I missed the burden. The insanity. The ridiculousness. I missed him. The man who dreamed I could be Dagny Taggart but whose everyday life careened off the rails. The man who laughed without limits but also cried without restraint. The man who opened my eyes to the joys and horrors of the world, but also made me turn inward and away. The man who was one of the ‘beautiful ones’ who became disabled and deformed.

Maybe it was always my nature. Maybe I gravitated toward a life heavy with a responsibility that allowed me to stay shielded, my purpose small but mighty. My world limited but loved. My heart soaring in words but my feet on the ground.

I’m okay with the bubble. The smallness. The calm. The nothing.

I always loved the rain.

Alisa Schindler is a freelance writer whose essays have been featured online in the NYT, Washington Post, Brain, Child, Parents, Good Housekeeping, and The Well at Northwell Health, among others. In her spare time, she writes sexy, suburban fiction. Find out more about her at alisaschindler.com.

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Guest Posts, Family

The Difference Between a Father and a Dad

October 20, 2016

By Alisa Schindler

I call multiple times in the hope that when I arrive he will be outside waiting. There’s the wakeup call. The check in an hour later to make sure the wakeup call actually prompted some movement. The, ‘I’m getting in my car’ call, the, I’m ‘five minutes away’ call, and of course, the ‘I’m outside waiting’ call.

Depending on his coherency and agitation, I judge whether it seems sane to actually wait for him to come out. In about 1 in every 10 or so visits, I actually pretend that he might just walk out without my assistance, so I sit and play on my phone or read a few pages in my book letting the minutes disappear along with my hope, before eventually giving up and heading in.

Walking into his apartment my face immediately falls, but I am quick to pick it up because the floor is disgusting. Even with a home health aide there six days a week, he spends much of his alone time upsetting any attempts at cleanliness or organization she may have accomplished.

It is Sunday, the aide’s day off, and already the apartment looks ransacked. Pills everywhere – purple ones, pink ones, yellow and white ones dotting the floor like dropped M&M’s. Multiple red Solo cups darkened with colas, crusty mixes of yogurt and cereal and more pills stand up and out in the clutter of papers piled all around. Cabinet doors suspend open, cereal boxes ejected to the counter, Kashi and Cheerios strewn onto the floor. Clothes covered in food stains and old cigarette holes hang on the backs of chairs while a pizza box that was apparently used as a plate for what may have been his middle of the night snack of eggplant parmesan, remains discarded on the couch. Continue Reading…